(no subject)

[violachic]

Yeah. So I had a really bad night last night. Lots of pain intermittently, and I was up and down a lot. I didn't get up until about 3:30 this afternoon, but had lain in bed trying to get up for awhile before that. The pain isn't as bad now, but its still up from where it was a few days ago.

Yesterday, polyfrog introduced me to The Spoon Theory. It makes a lot of sense to me. While it was originally conceived by a woman with chronic illness, it can be applied to anyone who is laid up for any amount of time with illness, injury, or other medical issues- probably can be applied to things like depression as well.

I don't have very many spoons today. Luckily, being online takes up fewer spoons than I thought it might. But I do need to shower and wash my hair tonight, and that will take a lot. My big hope is to at least get to church for Easter tomorrow, and maybe even a party in the evening. Morning will take more priority. We'll see how tonight goes. Blah.

I've also had some spates of feeling sorry for myself. One of my co-workers called me a couple days ago, and that made me miss being at work like crazy. I also learned that everyone from the Chicago office is going to DC for Tom's funeral next weekend, and I can't go. That really bothers me, but there's nothing I can do about it.

I started a new medication, though. It is an anti-seizure medication originally, and is also used for shingles pain. It is for medical issues involving nerves in general, so if this works, it will be as much of a diagnostic tool as it is a treatment. Down side is, it can take two or three weeks to have full effect. I have to start it small and ramp it up, and if I have to go off it, ramp it down. I'm extra woozy today, although I'm taking fewer oxycodone, but its hard to tell if that's a side effect of the new medication, or fatigue from the battle I had last night. Its very interesting, the fact that simply being in a lot of pain can really wear you out.

Dunno. I'm feeling kind of blah today. Hopefully tomorrow will be better.


Next person to come visit, will you please bring lots of chocolate?

Comments

[pheret1.livejournal.com]

I will visit you and bring you chocolate. I'm glad that you've been introduced to the concept of "spoons." Remember that you have to save them up and know what's ahead.

[bethypooh95.livejournal.com]

i am sorry that you are going to miss the trip to DC in honor of your coworker. but your health is definetly your primary concern, and i am sure Tom would want you home taking care of yourself. although me saying this may sound very trite and condescending,.... and not make you feel any better... you are no good to yourself, CPT or anyone else sick and in bed. so get to feeling better soon, so you feel more better. my mom was on neurontin... they just took her off it, let me know if i can be of any help.

[violachic.livejournal.com]

mostly curious about side effects, actually. not that everyone experiences it the same, but that's my main concern on any new med.

thanks,by the way, for all the kid words in recent months. they're very helpful.

[bethypooh95.livejournal.com]

she didnt really have any side effects from it... i just know that money is tight,... so if you need it,... i got it depending on the mgs...

[bethypooh95.livejournal.com]

and what would you expect... me to tell you to stay sick, and dependant on every one around you so i can listen to you tell me to fuck off? like that would be any fun. lol

[pam.livejournal.com]

Oh, I'm so sorry your are having to suffer like that. I know how horribly draining chronic pain can be - I was injured in a car accident once and it took about two months for my back to heal where I could sit or walk without pain... It was all I could do to make it to class (with only the paper in my pocket), then I had to stand through the whole class because sitting down hurt way to much to bear, and everyone stared, then I would just go home and lay on the floor and cry because getting up hurt too much. Either that or I'd take pain medication and sleep for 16 hours. Any either way, it was hard to think about anything else, because just ignoring the pain took huge amounts of effort.

So you have my total sympathy. Any my offer to deliver lunch still stands. I'll even bring a chocolate easter bunny. :-)

[bloodredrosev.livejournal.com]

Oh, sweetie, if I could, I'd come visit, and bring chocolate with me. Lots and lots. I hope the new meds start working soon, and that the next few weeks fly by for you.

[sweetzicke.livejournal.com]

I'm so sorry that you're going through this. I've had debilitating back pain for just a day or two at a time, and I know how emotionally draining it is. Thanks for the 'spoon theory' link, I've passed it on a friend who has a close friend with Lupus.

Happy Easter, hope you get lots of chocolate!

[tanyad.livejournal.com]

Name the chocolate you want... and the date, I'm there.

[ironheadjane.livejournal.com]

Hm. Tanya, Amy and chocolate. Sign me up. :)

Chicago For Peace

[socialistfarmer.livejournal.com]

Hello-a post about Food Not Bombs a few weeks ago made me realize the info for Uptown FNB posted on chicagoforpeace's lj profile has been incorrect since at least the Spring of 2003.

I was thinking you might want to replace the weekly events listing with the one posted here, http://www.newworldresourcecenter.com/events/, since it's constantly being updated. Or at least remove the Uptown FNB serving.

Thanks, and thanks for maintaining the community! And I hope you're feeling better.

[magp.livejournal.com]

Just a note to wish ya more healing. This must really suck, to put it mildly.