Saga

Mar. 30th, 2006 03:45 pm
violachic: (Default)
[personal profile] violachic
Well, here is the saga of the last week and a half or so, recounting the mystery of this illness.


Last Sunday night, I was woken up two or three times with a sharp pain. Each time, I discounted it, and was able to shift into a comfortable position and go back to sleep.

Monday, I woke up and made this post</>.




So by the time I'd made that post, I realized I really had to see somebody about the pain. By lunch, I couldn't lift anything, and coudn't even sit still in my desk chair without pain. I figured, since it was in my rib area, I'd see my chiropracter first. So off I went. They poked and prodded at me, and declared that the points where I was having the pain pointed to something internal- specifically, something to do with kidneys. They'd run a preliminary lab test on me, and I was supposed to come back the next day for a follow-up, especially if I still had pain. My friend, Lori (who isn't on LJ), had invited me to swing by her place on the way home from work, so I had to let her know that wasn't going to happen. Being a nursing student combined with the fact that she lives about a mile from where I was at the doctors- not to mention a good friend- she offered to come up to the doctors and be with me. That day, I declined, as I was aboutto go home, anyway. I did go home, and luckily I had a car from work to drive, because there was no way I was getting on the el in that much pain. I'm sure I'd have passed out long before I got home. I went home, took some Aleve, and lay down, planning on not getting up again until I had to go back to the doctors the next day.



The chiropracter called me right before I left the house to let me know the preliminary labs had come back normal. We decided I should come in, anyway, as the pain was still present, and getting worse. I got there, and they did some more poking, but the level of pain wouldn't let them manipulate my spine enough to see really well what was causing my pain. Lori showed up, and asked all the right questions. Eventually, they said that they recommended further diagnostic testing, which they didn't have the capabilities to do there. I checked with what resembles my primary care physicians, which is a clinic in Little Village that is associated with St. Anthony's hospital. They didn't have the facilities either, and recommended I go to the ER at St. Anthony's. I really didn't want to go to St. Anthony's, as they always seemed like a moderately sketchy hospital to me. At that point, I asked Lori to tell me what to do, and she said "you're coming with me to Rush. I have to work in forty minutes anyway. I'll get you into the ER." And she did.

Unfortunately, the ER that night was completely slammed. I got there just a little before 3 pm. [livejournal.com profile] polyfrog joined me about 4 or 4:30. I finally made it through registration around 5. I didn't get called to be seen until almost 10:30. It was my own personal hell- waiting 7 1/2 hours in a waitiing room with only CNN, Lifetime Channel, and the 2-hour American Idol special (50s week, special guest vocal coach, Barry Manilow!) on TV, and Loud and Inappropriate Woman on the next bench. In pain to begin with.

When I finally got called back, an inexperienced nurse put my IV in. It hurt all night. They put my in for an ultrasound and a chest X-ray. The ultrasound sucked in particular, because in order to take a picture of what hurts, they have to press down hard on the places that hurt. It was the only time all night I cried. They also did a full panel of blood and pee tests.

The most frustrating thing was that all of those tests came back normal. All of them. I found out later that my white blood count was slightly elevated that night, but they didn'tmention it that night. Not being able to find anything wrong with me, the attending physician decided to send me home with painkillers, and diagnosed me with "chest wall pain". I still hurt. A lot.

Lori and Erik dressed me slowly, and we were about to proceed to the discharge desk when the radiologist comes running in, tells us not to go yet, and he needs to speak to the attending. My attending had already left, so he had to get a new one. The new attending came in and told us that according to one or other of the tests, my bile duct was enlarged. This wasn't serious enough to worry about this minute, but I was to have it followed up on with a GI specialist later. My discharge diagnosis was changed to "chest wall pain", and "gall bladder disease". Joy.

Lori, having the next day off work, and being the amazing human being she is, drove me home, tucked me in, and stayed on our couch so she could be there if I needed her.



Marathon day.

I did indeed wake up on Wednesday needing someone there. Luckily, Lori was in the living room. The pain was thousands of times worse, and when she tried to feed me toast, I almost threw it up on her. I couldn't move. It was obvious that the pain meds they had given me the night before hadn't been of any use. After almost an hour of sitting at the dining room table and watching me turn colors, Lori decided she was taking me back to the ER. The stairs out of my apartment building proved to be the first obstacle. It took me more than five minutes to get down them.

This time, though, when we got to the ER, it wasn't very busy. In fact, Lori was walking through when she was spotted by a doctor friend (Lori also works as a clerk in the ER, so she knows EVERYBODY) who teased her about being at work on her day off. She explained about me, and told him what we had gone through the night before, and he said "hey, bring her back, I"ll look at her". All in all, I waited about ten minutes, and didn't even have to go through triage.


First order of business was to get the pain under control. They decided the best way to do that was Morphine through the IV. This time, a much more experienced nurse put the IV in, and it didn't hurt. Turns out, morphine makes me really loopy.

They poked and prodded me some more, and took more of my blood and pee for tests. They sent me upstairs to have a CT scan. Which was moved up two and a half hours from scheduled, because Lori KNOWS EVERYBODY, and called her friend, the CT tech, to get me moved up.

At some point in the afternoon, [livejournal.com profile] pheret1 and [livejournal.com profile] polyfrog show up again. The pain is managed by the drugs, but it doesn't make it go away. I sleep away much of the afternoon that isn't taken up by actual medical procedures.

By evening, there is still significant pain, and they only way it is kept down is by the IV morphine. They don't have a diagnosis- in fact, they have a bit of a mystery- but they can't send me home in that pain, so I am admitted. And once again, Lori works her magic, because most people have been waiting hours upon hours for a bed, but she just puts a call through to the Bed Czar, and POOF, I have a bed.

Its nice to know people.

Marta, Lori and Erik come upstairs to tuck me in, and Marta was going to stay the night, but they have really strict rules on that now, so they all had to go away.



I was woken at 6:30 am by a phone call from my sister, telling me the three remaining hostages in Iraq were released. I celebrate for about a minute, then I'm overcome by my drugs, so I can't. It definitely makes me very, very happy. I watch one morning news report about it, then realize that I could drive myself insane trying to watch news coverage of it all day, and decide not to. I go back to sleep.

Thursday in general was mostly taken up by sleeping and showering. There wasn't a lot the medical staff can do for me, except poke at me some more where it hurts, and ask me obscure questions, so I'm left relatively in peace. I hadn't showered in a couple days, plus I have all the hospital residue on me (you know how you feel after a couple days of all that recycled air), so Marta decided I should shower. It was moderately successful, if not a really, really long procedure, and exhausting. At least I was cleaner. I suppose it made my spirits lift.

Pain is still there, hovering around the 6 or 7 mark (on the one-to-ten scale) when the drugs wear off, and around 3 or 4 when I have them in me. The presence of the pain is still a mystery, as all labs continue to come back negative, and it turns out that my bile duct isn't actually enlarged. I really liked my resident, but I really, really liked my attending physician. She spent several hours with the radiologist going over all my imaging results, looking for something they may have overlooked. They didn't find anything, but I'm glad she looked. She informed me that she is sending me the next morning to the physical therapy department, to see if there is anything they can do for me. At this point, they've ruled out anything internal, and are focusing again on something muscular/skeletal. Although the CT scan and the x-ray showed the ribs, and there is nothing fractured or broken; so it must be more muscular. Except the pain is still acting like it is something internal.

That night, the resident comes in and tells me that they think it could be shingles. I don't have the distinctive rash, but the pain is acting exactly the way pain with shingles acts. Its not a diagnosis, only a hypothesis at this point.

I don't think anything else happened on Thursday, except that they tried to feed me catfish for dinner. I objected, and Marta decided she'd rather do something about it than listen to me whine, so she got me another dinner. I believe Erik ate the catfish.

Oh yes, and Bonnie (the priest) came to see me. That was nice.



The first thing they did to me on Friday was take me to PT. The physical therapist didn't do a lot to me, but she wanted to watch me move. She made me walk, and go up and down stairs, and get into and out of "bed". She then declared that there was nothing she could do for me, as the limited range of motion I had was strictly pain-related, and there wasn't any muscle issues, as far as she could see.

Okay, strike three.

When I got back from there, the pain was way intensified. Movement had always intensified it, and I hadn't been required to do that much moving for several days. I was way up at about an 8 out of 10. They gave me double the drugs (I had started on the lowest possible dosage of morphine, and pretty much maintained that throughout, so double that still wasn't a whole lot). Although, in an effort to get me discharged, they'd been trying to get me onto oral painkillers, because if I could managed my pain without the IV, I could at least go home and be just as miserable in my own bed,and without the constant poking and prodding.

At some point that morning, the attending was back in, and we were talking about shingles. She finally got me sitting all the way up (previously an incredibly painful process), and looked all over my back. There still was no distinctive shingles rash, but she did find a rash at the top of my back that was totally not shingles, but was defintely of concern. So my discharge was delayed several more hours, as we waiting for the dermatologist to come down and look at it. Finally in the middle of the afternoon, she did. Both the derm resident, and the attending, declared that it was definitely a viral rash- actually, there were two, but the one faded, and was attributed to the fact that I'd been lying flat on my back for three days- and suggested perhaps the pain was associated with whatever virus was causing this rash. Either way, it was too late to give me an anti-viral, as those need to be administered in the first 48 hours of symptoms showing. And it was definitely later than that.

Marta escorted me home, she and Ben got my prescription filled, Ben brought me "i'm sick food", like crackers and juice, and they drugged me up and tucked me in.



So the pain level was manageable enough by oral meds that I could come home on Friday. That was one level of improvement. Then, I beleive there was another level over the weekend. The problem is, I had to go out the last three days in a row for something, and that not only exhausted me, but made the pain go up. At the moment, I'm back up to about where I was on Saturday. I didn't have to do anything today, and I won't tomorrow, either, so I'm hoping that will do it. I'm supposed to be on a plane to Seattle on Sunday for [livejournal.com profile] ironheadjane and [livejournal.com profile] disappearinjon's wedding, and I'm not missing that for the world.I had a follow-up doctor appointment on Tuesday that was pretty pointless, at least I felt. More of "take your meds, rest, and come back if the pain gets worse". Blah. Frustrating.



So I figure, if all the doctors are telling me it has to be muscular, then the next person to talk to is someone who knows muscles. Last night I was on the phone with a friend from church who is a licensed massage therapist, and she told me she'd be happy to take a look and see what she can find. Her husband is an MD, so he's thinking hard about what it could be, as well. In addition, she told me about something called Twelfth Rib Syndrome that I'm doing a little research on.

Mostly, I want the pain to go away. Second on my list of wants is to figure out why its there. If I can figure that out, maybe I can help make it not happen again. Also, it makes it easier to treat in the long run. I hate things with no diagnosis.

I did ask several doctors if this could be soley stress-induced. They all have said emphatically "no". One doctor said that I could be feeling it more acutely due to stress, but its not soley from stress. Two different doctors smiled and said "no, its not in your head". So that makes me feel good.

Anyway, that's my story so far. I'm still not at work, and won't be until at least the week after next, as I will be (hypothetically, anyway) in Seattle. Luckily, there is as big wave of "lets take some time off now that we're not in crisis mode" sweeping through the office, so its not a huge deal that I'm not there. We also have some really awesome reservists who are spending a couple weeks there doing basic office tasks- which is what I would do if I were there.

I would love to see people, but I'm still not really up for much. And anyway, all you'd end up doing is sitting across the table from me and looking at me.

I'm out of minutes on my cell phone *pout* so even though I won't be able to dive to answer it, you're better off calling my home line for now.




Phew. I'm done. Seeya later.

Date: 2006-03-30 11:17 pm (UTC)
From: [identity profile] pheret1.livejournal.com
Just a few clarifications from a supporting player (one who wasn't on the drugs....):

Marta decided I should shower

Naw, that was on a strong suggestion from Lori. She's awesome.

Marta decided she'd rather do something about it than listen to me whine

You didn't start whining until you got home. It was cute, and a sign you were feeling better.

no distinctive shingles rash

But there was something that could be scars from a previous shingles outbreak. 'Cause you're just that special!

Also, you forgot to mention that they've still not definitively ruled out aliens as the cause of your pain!

Talk to you soon!

Date: 2006-03-30 11:24 pm (UTC)
From: [identity profile] pheret1.livejournal.com
Yes, aliens have not (I repeat not) been ruled out as the cause of her pain.

Date: 2006-03-31 12:03 am (UTC)
erik: A Chibi-style cartoon of me! (Default)
From: [personal profile] erik
Could be an alien virus...have you seen or read The Andromeda Strain?

Date: 2006-03-31 04:26 am (UTC)
From: [identity profile] pheret1.livejournal.com
Exactly!

Date: 2006-03-31 12:03 am (UTC)
From: [identity profile] fille-de-livre.livejournal.com
those aliens can be pesky.

Date: 2006-03-31 04:25 am (UTC)
From: [identity profile] pheret1.livejournal.com
Why, do I cause you pain? We could be on to something here...

Date: 2006-03-30 11:18 pm (UTC)
From: [identity profile] belmikey.livejournal.com
Meh! How am I supposed to bombard you with text messages to cheer you up if you're out of minutes! :-P

*hugs*

Date: 2006-03-31 02:31 am (UTC)
From: [identity profile] violachic.livejournal.com
Oh, I can still receive them- they're free to get. You just can't get any response from me.


wait... should I be admitting this...?

Date: 2006-03-30 11:47 pm (UTC)
From: [identity profile] bibliofile.livejournal.com
I'm glad you're well enough to post an update. I'm sorry to hear that you've been in so much pain, though. The only other person I know on morphine has cancer.

If the symptoms subside, but then come back again, will you be able to try the antivirals?

Date: 2006-03-31 02:49 am (UTC)
From: [identity profile] violachic.livejournal.com
not sure, but its probably worth asking.

actually, since the oral morphine was so expensive, they let me go home with something different. but I wasonly on so very little morphine. I didn't like the rush it gave you, though. good thing, I won't ever become an addict!

hey,

Date: 2006-03-30 11:51 pm (UTC)
From: [identity profile] splagxna.livejournal.com
there are prayers being said for you, babe.

Re: hey,

Date: 2006-03-31 02:37 am (UTC)
From: [identity profile] violachic.livejournal.com
thank you :-)

Also... that whole dinner thing... um, rain check?

Re: hey,

Date: 2006-03-31 01:57 pm (UTC)
From: [identity profile] splagxna.livejournal.com
no! man, i thought you were gonna be up for it this weekend! whatEVAH, just 'cause you're in horrendous pain you think you get to back out of all your social obligations....?

(ahem. well, DUH.)

Date: 2006-03-30 11:59 pm (UTC)
From: [identity profile] bammba-m.livejournal.com
That sounds like something out of Medical Drama.

i'm glad you're well enough to be home.

Date: 2006-03-31 12:28 am (UTC)
From: [identity profile] happynoodlehead.livejournal.com
sounds like how i was the week before i had my gal bladder removed.

i'd get it specifically tested if I were you. they won't do it right away for me because i was "too young". if your bile duct is enlarged that should be a huge red flag that you have blockage in the duct which is caused by gal bladder stones or disease. the pain that you are describing is very reminissent of gal bladder attacks of which i had two, i thought i was going to die and i collapsed in a stair well in the dorms.

good luck and get well soon! hope it's something easier!

Date: 2006-03-31 02:34 am (UTC)
From: [identity profile] violachic.livejournal.com
well, by Thursday they were saying that it looked like the bile duct wasn't actually enlarged. That, plus the fact that -all- of my labs are normal made them mostly rule out gallbladder. Its at the "hey, check on it in a few weeks with a doctor" kind of phase. But the pain still presents as either gall bladder pain or kidney pain, depending on where you poke.

The whole thing is very mysterious.

Date: 2006-03-31 06:26 am (UTC)
From: [identity profile] happynoodlehead.livejournal.com
well, as long as they don't do to you what they did to my friend millipuppy and say "well, we can't figure it out so we'll take the gal bladder and see if that fixes it." she felt alot better and probably did have some problems there, but she still has some problems and pain that it didn't fix.

maybe it will just mystriously go away. that's my hope for you. :)

Date: 2006-03-31 12:48 am (UTC)
From: [identity profile] strawberry83.livejournal.com
*hugs* Sorry about the pain, I know how frustrating that can be especially when you don't know why it's there. Hang in there, I'm glad you're at least well enough to be home.

Date: 2006-03-31 02:46 am (UTC)
From: [identity profile] violachic.livejournal.com
that picture in your icon of one of the cutest dogs in the world definitely makes me smile :-)

I mean, it could be the drugs, but it could also still be the dog.

Date: 2006-03-31 01:14 am (UTC)
From: [identity profile] tanyad.livejournal.com
Hey... let me know if you still need help packing. :)

Date: 2006-03-31 01:15 am (UTC)
From: [identity profile] thewayoftheid.livejournal.com
GET BETTER OR I'LL KILL YOU!

Ok, so I'm no good at the motivation thing.

*hugs*

Date: 2006-03-31 02:35 am (UTC)
From: [identity profile] violachic.livejournal.com
like my dad used to say "if you play in the street and get hit by a car and die, I'll kill you"


thanks, tho :-)

Date: 2006-03-31 02:08 am (UTC)
From: [identity profile] ironheadjane.livejournal.com
*sigh* Oh hon, I wish I could do something to make it all better. *hugs*

Date: 2006-03-31 02:36 am (UTC)
From: [identity profile] violachic.livejournal.com
I'm hoping wedding goodness will make it all better :-) I mean really- a day at the spa can cure anything, right?

I'll give you a call tomorrow (Friday) if you let me know what would be a good time.

Date: 2006-03-31 01:37 pm (UTC)
From: [identity profile] ironheadjane.livejournal.com
yeah... here's hoping I can still book those spa reservations. it's been a rough week for me. :( We'll talk soon. I'll try to chat when I've got a free moment at the office, otherwise, I'm home around 6pm Pacific Time.

Date: 2006-03-31 02:27 am (UTC)
From: [identity profile] blistermoth.livejournal.com
*starts making chicken soup*

Date: 2006-03-31 02:31 am (UTC)
From: [identity profile] bethypooh95.livejournal.com
FEEL BETTER SOON!!

Date: 2006-03-31 05:21 am (UTC)
From: [identity profile] violachic.livejournal.com
I'm trying :-) Honest, I am :-)

Date: 2006-03-31 04:34 pm (UTC)
From: [identity profile] bethypooh95.livejournal.com
ITS ALIVE!!!! ITS ALIVE!!! HOLY SHIT ITS ALIVE!!! see look mommy it speaks!

Date: 2006-03-31 02:40 am (UTC)
From: [identity profile] donia.livejournal.com
"...and Loud and Inappropriate Woman on the next bench."

I've never been anywhere near that hospital!

Here's hoping everything smoothes itself out soon.

Date: 2006-03-31 02:47 am (UTC)
From: [identity profile] violachic.livejournal.com
actually, you know that i'm just coming up with one excuse after another to not come pick up those books at your house. you know that, right?

Date: 2006-03-31 04:12 am (UTC)
From: [identity profile] donia.livejournal.com
I had a feeling you were faking this whole thing. Congratulations on putting so much effort into not picking them up and enlisting your sister and others to make your story oh-so-believable. You always give 100 percent. Perhaps someday you'll take 100 percent (actually, it'll have to be 99 percent since I have recently given away one of the poetry books).

Date: 2006-03-31 03:46 am (UTC)
From: [identity profile] pheret1.livejournal.com
She didn't say "Loud, Inappropriate, and Abso-fucking-lutely Hilarious."

Date: 2006-03-31 04:15 am (UTC)
From: [identity profile] donia.livejournal.com
Ah, what a difference two words can make. Without people cracking a smile when I crack wise, I would definitely be in bigger trouble than I usually am. Thanks for the clarification, hot stuff.

Date: 2006-03-31 04:24 am (UTC)
From: [identity profile] pheret1.livejournal.com
Aw, if I had to watch a two-hour American Idol special, the theme was music from the 1950's, and the special guest coach was Barry Manilow, I would want to watch it with you.

Date: 2006-03-31 05:16 am (UTC)
From: [identity profile] donia.livejournal.com
Makes me wish I had a tv.

Date: 2006-03-31 04:14 am (UTC)
From: [identity profile] mofus.livejournal.com
I'm glad you're feeling better. And I'm glad you did the above summary so I have a better picture of what's been going on.

Date: 2006-03-31 04:18 am (UTC)
From: [identity profile] lisatheriveter.livejournal.com
I have shingles myself, and while my pain doesn't present in the area of yours, I can tell you that the sensation is spot on. One bright spot - you can go ahead and take a round of Valtrex and see if that helps. It works only on the shingles virus, and you can take either a megadose for 7 days to kill an existent outbreak, or a lower daily maintenance dose to prevent them outright. Valtrex is pricey, but there is now a much lower-cost alternative (which name escapes me, sadly. I know Susie Bright mentioned it on her blog a few months ago). It might be worth a try, as the side effects are minor and if you don't have shingles, your body will simply process and release it.

Good luck. I'm thinking good thoughts for you.

Date: 2006-03-31 05:20 am (UTC)
From: [identity profile] violachic.livejournal.com
THAT is the best piece of advice I've gotten so far! I'll ask about it, especially if the pain doesn't go away soon. Thank you!

Date: 2006-03-31 06:14 am (UTC)
From: [identity profile] poetdan.livejournal.com
Valtrex is used for ALL herpes related outbreaks. Singles being Herpes Zoster and usually caused if someone had chicken pox and then is exposed to someone with active chicken pox. Valtrex saved my ass...well my left side. The SOONER you take it the better.

But have you ruled out lyme disease?

Date: 2006-03-31 04:30 pm (UTC)
From: [identity profile] magp.livejournal.com
That's it, we're calling Dr. Quincy out of retirement...

Date: 2006-04-01 01:07 am (UTC)
From: [identity profile] surlytart.livejournal.com
Glad you're ok! I've been wondering.

Oh, and don't think that just because you hurt a little doesn't mean you aren't gonna catch hell for waiting until just after I move from Seattle to visit there.

Meh!

(Uh, don't be surprised if seattle's a bit down these days. Mass murder in the extended family does that. But it should be good, cause weddings are happy, right?)

Date: 2006-04-02 12:59 am (UTC)
From: [identity profile] violachic.livejournal.com
I did wait, you know.... until just.... ;-)

Yeah, I heard there was something major that happened there earlier this week. Don't know details, though.

Date: 2006-04-02 09:19 am (UTC)
From: [identity profile] surlytart.livejournal.com
Ugly stuff. Seattle Times.com or seattlePI.com has a bunch of the details... too close to home. Friends of mine were there, you know?

Enough death already!

Hey, I went to a Pal presentation tonight and got hooked into ISM here. Yay. Need to get back.

Take care of yourself, please?

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